What to Do After an Autism Diagnosis: A Parent’s First Steps

When your child receives a diagnosis of autism, it can feel like the ground has shifted beneath your feet. Whether you’ve been expecting it for some time, or it’s come as a surprise, this moment is often accompanied by a swirl of emotions: relief, grief, confusion, validation, fear, and hope.

This blog is written just for you, the parent or carer. It's not about what to say to your child right now (we’ll explore that conversation in a future post). Instead, this is about your experience. What you need to know. What support is available. And how you might begin to find your footing again as you adjust to this new understanding of your child and perhaps, of yourself.

Allow Yourself to Process

It's natural to experience a spectrum of feelings after your child's diagnosis. Some parents feel validation, while others grapple with uncertainty. Give yourself permission to feel and process these emotions without judgment. Remember, your child is the same unique individual they were before the diagnosis; this new understanding simply provides a clearer lens to support them.​

Educate Yourself About Autism

Understanding autism spectrum disorder (ASD) will empower you to make informed decisions for your child. Autism is a lifelong developmental condition that affects how individuals communicate, interact, and perceive the world. Familiarise yourself with both the strengths and challenges associated with autism. The National Autistic Society offers comprehensive resources tailored for families in the UK. ​National Autistic Society+1nhs.uk+1

Connect with Support Networks

Building a support network is invaluable. Engage with local and national organisations that offer guidance, workshops, and community connections:​ 

• National Autistic Society: Provides resources, support groups, and an online community for parents and carers. ​National Autistic Society

• Local Support Groups: Many communities have local groups where parents share experiences and advice. Your GP or local council can provide information on groups in your area.​

• Online Communities: Platforms like Mumsnet have forums dedicated to parents of autistic children, offering a space to ask questions and share insights. ​Mumsnet

Collaborate with Educational Professionals

Your child's educational journey is paramount. Engage with their school to ensure appropriate support:​

• Special Educational Needs Coordinator (SENCO): Every UK school has a SENCO responsible for coordinating support for children with special needs. Schedule a meeting to discuss your child's requirements and potential interventions.​

• Education, Health and Care Plan (EHCP): If your child’s needs are significant, consider applying for an EHCP, which outlines the support they are entitled to receive.​ This process will be covered in more detail in a future post.

Prioritise Emotional Well-being

Caring for an autistic child can be demanding. It's essential to look after your own mental and emotional health:​

• Seek Counselling: Professional counselling with a therapist who specialises in Autism can provide a safe space to process your feelings and develop coping strategies.​

• Join Parent Workshops: Many organisations offer workshops focusing on stress management and resilience for parents.​ It can also be a great way to build relationships with other parents in a similar position.

• Allocate Personal Time: Even short moments of self-care can rejuvenate and equip you to support your child effectively.​

Explore Recommended Reading

Delving into literature can offer deeper insights and practical strategies. Here are some highly rated books, praised by parents for their relevance and support:​

• "Autism: How to Raise a Happy Autistic Child" by Jessie Hewitson

  An award-winning journalist and mother shares her journey, offering practical advice and emphasising the importance of understanding and celebrating neurodiversity. ​The University of Edinburgh

  
  

• "After Your Child's Autism Diagnosis: A Quick, Supportive Guide" by Debby Elley

  This guide provides well-researched advice coupled with relatable personal anecdotes, helping parents navigate the initial stages post-diagnosis. ​Amazon

Stay Updated and Flexible

Research and understanding of autism are continually evolving. Stay informed about new therapies, interventions, and educational strategies. Attend workshops, subscribe to newsletters from reputable organisations, and remain open to adjusting your approaches as you learn more about your child's unique needs.​

Final Thoughts

This post is meant to support you the parent, the carer, the steady hands that hold a child who sees the world a little differently. If you're wondering how and when to explain a diagnosis to your child, that's a deeply important topic, and one that deserves its own space. I’ll be sharing more guidance on that in upcoming post’s, grounded in developmental sensitivity and emotional safety.

For now, please know this: you don’t have to have all the answers. Just being here, reading this, shows your commitment to your child’s well-being. And that is a powerful beginning. Celebrate your child's individuality, seek out resources, and remember to care for yourself along the way. Together, with your child, you'll discover strengths and joys that will illuminate the road ahead.